Its been just over 4 months since Happily Ever After was released and I was finally able to see how its been doing; I received my first quarter sales numbers and I sold over 500 books between October 1st and December 31st of 2012! Which is pretty great considering my book was only released November 17th! I can’t wait to find out in May how sales were in the first few months of 2013.

Some of you may have received thank you emails from me recently … I wanted to say thank you to those of you that purchased my books. It means so much to me. Sharing some of the most private details of my GBS experience in my book was a little scary for me but seeing how much awareness on Guillain-Barre it is creating has made it all worth it. And if you haven’t already, please be sure to post your review of the book HERE. Reviews are very important on amazon which helps promote the book, and I always love getting feedback from those that have read it.

As I mentioned in my last post, a few weekends ago along with James, Casey and my mom, we headed out to Golden to visit my cousin Spencer and his girlfriend Faith. Faith works at the ski hill in Golden and had given us lift passes so it was the perfect opportunity for me to try skiing again. We almost went at the end of the season last year but my legs were still pretty weak and I decided to wait one more year – which I’m glad I did because looking back I highly doubt my legs would have been able to handle it.

Skiing actually ended up being easier than I thought it would be; turns out it is hard on the thighs and not the ankles. So my weak ankles didn’t affect my ability to ski at all. Having not been skiing in three years and since having GBS, I was a little nervous – and I was pretty rusty at first but after a few runs I gained more confidence, and by the end of the day I was doing black diamonds. So I can now cross off skiing as an other milestone I have reached! For the record though, I actually wasn’t skiing; I was snowblading – which I find a little easier than skiing and figured I should start there again – but after seeing how well I did, I think I’ll revert back to skiing next year. With Faith being such an avid skier, I’m sure she will be happy to hear that as I’m pretty sure we embarrassed her.

I’ve always enjoyed skiing, but that day out on the mountain reminded me just how much. And knowing that if I hadn’t fully recovered from GBS I would have never been able go, made me appreciate it that much more. I’ve never liked sports; anyone that knows me would say I am quite terrible at sports but this is one thing that I am actually decent at. It’s a year away but I can’t wait for the next ski season to go again.

Originally the plan was for just James and I to go to Golden and we would leave Casey at home with grandma; since we would be doing a day of skiing. We were a little torn on leaving her for an entire weekend since we had just spent a week away from her to go to Mexico, but we knew this was one of the last weekends of the ski season that we could go. Instead, my mom ended up coming with us so that we would still get to see Casey the rest of the weekend, and Casey spent the day with my mom while we skied. It was perfect! Spencer and I have been close since we were little; to me he is more like my brother, and it was nice to not only spend some time with him and Faith but for Casey to see them as well.

This week I got a letter in the mail saying the medical condition was removed from my license! One of the last steps in feeling like my life has returned to normal. After I recovered from GBS, I had to retake a road test to get my license back, and because of how weak I still was at that point, a medical condition was placed on my license stating that I had to have a doctor approve my physical condition every year before being able to renew my license. It’s not that it was that huge of a deal, just that I had to complete a physical with my doctor, had to have him complete a medical form for me (that was costly) and I had to do this every year. But because I have made a complete recovery, my doctor was able to write a letter and I received the good news that the condition has now been removed.

This past weekend we held our quarterly GBS Support Group here in Edmonton. It’s really nice to be surrounded by people that have been through what I have. When I talk about the pins and needles feeling I have in my toes, or the lack of balance I still have, and even the way my fingers sting in the cold; it’s comforting hearing that they know exactly what I mean. Some of these sensations I feel are impossible to explain, so it’s nice that someone out there gets it. And it’s nice to be a part of their recovery too – to hear how they have improved and the things they have accomplished since our last meeting– it definitely makes me proud. There are so many milestones one faces with GBS- even after recovery there continues to be more. From the first time I wore high heels again, going back to work, and to the first time I was back on that ski hill- these moments are great reminders of all the things I continue to conquer even years later.

And my next endeavor is running a 5km run in July called Color Me Rad, which raises money for the Stollery children’s hospital. Before GBS, the last time I ran was in Jr. High for a 12km run in Spokane called Bloomsday. I know a few GBS survivors that have ran marathons since recovering and that really inspired me. I wanted to prove to myself that I could do something like that, and with this just being 5km, it seemed like the perfect place to start. I wasn’t sure that any of my friends would be interested in joining me but turns out almost all of them are, and I am really looking forward to doing this with them. All of us are moms, or will be by July (our team is the “Yummy Mommy’s”) and knowing how important the children’s hospital is if needed, we are all running in honor of our babies. I’m so excited for it. Color Me Rad isn’t here yet but I am already very proud of myself for going after this goal. An other milestone to add to my list.

About hollyaftergbs

Author of Happily Ever After - My Journey with Guillain-Barre Syndrome and How I Got My Life Back.
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2 Responses to Milestones

  1. Katrina sheets says:

    You are such an inspiration! We just got home from RIC in Chicago. My son, Cooper, was diagnosed with GBS June 3, 2015 and it has changed us. I felt blindsided and heartbroken. Watching your video made me cry but it helped us to keep faith as cooper recovers. Thank you so much for sharing. It means a lot!

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