Advertisements
//It’s GBS Awareness Month!

It’s GBS Awareness Month!

Advertisements
By |2018-08-27T22:30:24+00:00May 10th, 2017|Uncategorized|6 Comments

About the Author:

Author of Happily Ever After - My Journey with Guillain-Barre Syndrome and How I Got My Life Back.

6 Comments

  1. Susie August 14, 2017 at 11:50pm08 - Reply

    I am also a survivor of and acute form of gbs. 2.5 months on ventilator then about 5 months rehab. It changes your life. I was 32 , I year after the birth of my 2nd child. Knocked on deaths door before I finally started to turn around. Still suffer with neuropathy everyday, I just press on, people dont see it so they don’t understand, how painful it is. But what does not kill us makes us stronger.

    • hollygerlach August 23, 2017 at 11:50pm08 - Reply

      Yes it certainly changes us and makes us stronger!!!

  2. Emily May 16, 2017 at 11:50pm05 - Reply

    Hi Holly – I saw your post on FB and as soon as I started reading, I knew you had had Gullian Barre (even before you said it). I had Gullian Barre Syndrome when I was 6 years old, over 30 years ago (I am almost 41). Despite being such different ages, my story is very similar to yours. I had tingly fingers the day before Thanksgiving. The day after Thanksgiving, I woke up and could not walk. My parents took me to the hospital and, hours later, I was diagnosed with GBS. Within a few days, I was completely paralyzed, at the worst of it, I could not even open or close my eyes. I was quickly put on life support including a tracheotomy. I was in ICU on life support for 6 weeks. On New Years Day, the doctor came it and removed my trach. I had a gaping hole in my neck, but I could not wait for my parents to visit so that I could show them it was gone! After that, I left ICU and was able to start speech therapy, physical therapy, and occupation therapy. I left the hospital just after Valentines Day. I spent some time in a wheelchair, on crutches, learning to crawl again, and finally I was able to walk around June of the same year. For the most part, I have fully recovered. The muscles in my feet were ruined from lack of use and even after a tendon transplant, I still limp when I walk. But, of course, I am just happy that I can walk. Although having GBS was devastating, I look back on that experience and know that it changed my life for the better. I am more compassionate, more understanding and have a greater sense of gratitude for all the little miracles of life….like being able to walk! Thanks for sharing your story! Emily

    • hollygerlach August 23, 2017 at 11:50pm08 - Reply

      Thank you for sharing your story! I cant imagine going through GBS as a child. Do you remember much of your experience? I am happy to hear that you have recovered so well xoxo

  3. Carla May 16, 2017 at 11:50am05 - Reply

    Hi Holly, I enjoy reading your blog. I also was diagnosed with GBS in 2013, age 27, 16 weeks pregnant and fully ventilated. I’m almost fully recovered and have a very happy and healthy 3 1/2 year old boy and a 15 month old little girl. It’s nice to be able to relate to your posts, especially given our circumstances were very similar!

Leave a Reply

%d bloggers like this: