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Be inspired by Holly's emotional journey from her life crashing down with GBS to living life to the fullest!

⁣ May is GBS AWARENESS MONTH. Have you heard of

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May is GBS AWARENESS MONTH. Have you heard of Guillain-Barre? ⁣
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• It affects about 1-2 out of every 100,000 people - which is considered rare, but it’s not rare when it happens to you. ⁣
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• Guillain-Barre syndrome is an autoimmune disorder affecting the peripheral nervous system (the nerves not a part of the spinal cord or brain). Its caused by a reaction from the immune system - in a normal attack on our bodies, our immune systems fight off an infection; in GBS, our body sees an attack and our immune system fights it off then begins to attack the myelin sheath around the nerves, causing weakness and paralysis. ⁣
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• What sort of things can trigger GBS? The most common trigger is campylobacter bacteria (a bacteria found in undercooked chicken) and respiratory illnesses. It can also come on after the flu, after surgery, certain vaccines and even after a stressful event. Mine came on three weeks after giving birth (pregnancy/giving birth is another common trigger in GBS.) ⁣
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• Although there is no cure, the myelin sheathe around the nerves do start to regrow – as long as the damage is not too severe.⁣
Majority of patients reach their weakest point 2-3 weeks after their initial symptom- and then slowly start to recover. For me, the paralysis affected my entire body from the neck down and I did not start to recover for over 6 weeks. Then, the paralysis faded and I had to relearn how to use my body again. ⁣
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• Although most patients recover very well, about 30% of patients are left with permanent residuals. Some people are unable to write or type as their fine motor skills never return, and some require walking aids such as braces, canes, walkers and even wheelchairs. Most of us experience fatigue and other residuals. ⁣
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• You can learn more about GBS on my website - I have a ton of survivor videos that show what some of us have been through.⁣ ⁣
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⁣• Also - I was able to get a bunch of ebooks so if you’d like to learn more about my journey with GBS, you can purchase one directly from me for a much lower price ($2.00 US). Send me a DM and I’ll send you the code !

We are so excited to introduce the newest member o

We are so excited to introduce the newest member of our family - Benji River ♥️. We are so in love.

It’s GBS awareness month! ⁣ ⁣ Even though I

It’s GBS awareness month! ⁣
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Even though I recovered almost completely, I still have residuals that most people don’t see. Things like: ⁣
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•Aching nerve pain in my hands and feet. ⁣
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•Bouts of severe fatigue that’s usually brought on by stress. ⁣
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•Inability to regulate body temperature - I’m either freezing or really hot. ⁣
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•Odd sensations in my nerves (sometimes feels like electric shocks on my legs, other times like spiders crawling up my arms) ⁣
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•Hypersensitivity in my feet - stepping on a tiny pebble is like stepping on the sharpest LEGO in the world. I HATE wearing socks for this reason cuz they feel like sandpaper. I also have no ability to feel temperature on the bottoms of my feet. ⁣
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What residuals do you deal with ? ⁣
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To learn about other residuals after GBS, check out my video on Residuals up on my YouTube channel.

Had a wonderful Mother’s Day - made cupcakes wit

Had a wonderful Mother’s Day - made cupcakes with my mom and Casey ! Hope all you mommas had a wonderful day today! You deserve it!! ❤️🌸🌺

For those of you looking for some exercises to hel

For those of you looking for some exercises to help with your recovery from GBS (specifically to strengthen your ankles) check out the new video up on my YouTube channel.

For my #chronicillnesswarriors - What was your exp

For my #chronicillnesswarriors - What was your experience being diagnosed with your illness? ⁣
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My first symptom of GBS was a tingly finger, then pain in my neck. I went to a Medi-Centre when I started having trouble walking. The doctor said I had a pinched nerve; he told me to go home and take an Advil. ⁣
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A few hours later when the pain was too much to handle, I went to the ER. The ER doctor had no idea what was wrong with me, but this guy was smart enough to ask for help from a neurologist. Because my symptoms progressed so quickly (I was on a ventilator within 72 hours), and because he’d seen it before, this neurologist recognized GBS right away. ⁣ ⁣
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Ive heard a lot of horror stories - of people having symptoms for days and continuously being turned away at the hospital... even being told it’s all in their head. ⁣
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I know not all doctors are familiar with GBS (guess what guys, doctors know a lot but definitely not everything), so Im grateful this guy knew it was GBS within a minute of assessing me.⁣
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What was your experience being diagnosed? Did your doctor know right away what was wrong with you or did it take a while before they finally figured it out? ⁣

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