HOME - Holly After GBS

HOMEhollyaftergbs2018-10-09T16:07:30-06:00

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Be inspired by Holly's emotional journey from her life crashing down with GBS to living life to the fullest!

A friend of mine posted something really powerful

A friend of mine posted something really powerful a few weeks ago that I wanted to share, something said, I believe, by Elon Musk. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
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It’s the concept that if you give yourself 30 days to clean your home, it will take you 30 days. But if you give yourself 3 hours, it will take you 3 hours. The same applies to our goals. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
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I’ve decided to step away from my clients which has been a very tough decision for me but it’s what I need to do to reach this goal of getting my book done. I remember reading that Obama left his family for four months to finish his book, and while I can’t exactly do that, I gotta do what I gotta do. It’s crazy that I’ve been fitness training for a whole year now and while I love seeing the progress my clients make, writing is truly my passion. I don’t believe that I can put everything I want to in one book so I plan on writing another when this one is done - so this needs to be a huge priority for me. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
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With it being my 1 year anniversary of starting my fitness business this week I was going to do a sale anyways, so I figured the timing is perfect as I will not be taking on any more 1:1 clients (my Friday fitness class is still running) so if you’d like to purchase my 12 week fitness program to do at home on your own (includes checkins and videos) it will be 50% off for the next week.

Click the link in my bio for more info. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Love you guys ♥️⠀⠀⠀⠀⠀⠀⠀⠀⠀
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@hollyaftergbs #chronicillness #chronicillnesswarrior #raredisease #spoonie #guillianbarresyndrome #autoimmunedisorder #autoimmunedisease #gbs #guillainbarre #gbssurvivor #hollyaftergbs #gbsawareness #gbsrecovery #guillainbarresyndromesurvivor #shareyourrare #lifeaftergbs ⠀⠀⠀⠀⠀⠀⠀⠀⠀
#cidp #chronicinflammatorydemyelinatingpolyneuropathy #gbswarrior #cidpwarrior #mmn #gbscidpfoundationofcanada #raredisease #rareillness

Earlier this year I came across a message in my in

Earlier this year I came across a message in my inbox from someone that said what I went through with GBS does not make me a strong person, and that there are many other people out there who suffer through far worse than me. . .⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Id be lying if I didn’t say I was shocked at the boldness of the message (even more so because it was from a former friend).⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Now, on one hand I agree. There are people that fight much worse battles each day, things that I couldn’t even imagine having to go through on a daily basis. And I think for me, knowing that things “can always be worse” has helped give me a huge sense of gratitude.⠀⠀⠀⠀⠀⠀⠀⠀⠀
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But on the other hand ...can we just stop with comparing our traumas to one another??⠀⠀⠀⠀⠀⠀⠀⠀⠀
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It doesn’t matter if someone else “has it worse” than you. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Because no matter how mild or severe your pain was, what you’ve been through was real.⠀⠀⠀⠀⠀⠀⠀⠀⠀
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It’s valid. And it matters.⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Pain is pain.⠀⠀⠀⠀⠀⠀⠀⠀⠀
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If you had GBS and it was a mild case. If you had GBS and you are walking again. If you had GBS and it never affected your breathing. If you've gone through ANYTHING traumatic in your life.⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Stop comparing your trauma to what others have been though and know that we ALL deserve compassion and support for what we've gone through.⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Give me a heart if you agree ! ⠀⠀⠀⠀⠀⠀⠀⠀⠀
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@hollyaftergbs #chronicillness #chronicillnesswarrior #raredisease #chronicillnessawareness #chronicallyill #chronicillnesssucks #chronicpain #spoonie #stillsdisease #rheumatoidarthritis #potssyndrome #lupus #guillianbarresyndrome #autoimmunedisorder #autoimmunedisease #guillainbarre #gbssurvivor #hollyaftergbs #gbsawareness #guillainbarre #multiplesclerosis #cidp #gravesdisease #Hashimotosthyroiditis #Myastheniagravis #shareyourrare #lifeaftergbs #chronicinflammatorydemyelinatingpolyneuropathy #gbswarrior #cidpwarrior

In addition to the scar on my neck from having a b

In addition to the scar on my neck from having a breathing tube when I had GBS, I also have these ones on my tummy from when I had emergency surgery from complications administering treatment for GBS. Years ago I would have done anything to erase/minimize the scarring, now I can't imagine them not being there! ⠀⠀⠀⠀⠀⠀⠀⠀⠀
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I call them Survivor Souvenir’s. If you have them, please don’t ever be ashamed of them. Our scars are part of our stories, a part of who we are, apart of what we've overcome. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Let's hear your best Survivor Souvenir stories! ⠀⠀⠀⠀⠀⠀⠀⠀⠀
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@hollyaftergbs #chronicillness #chronicillnesswarrior #raredisease #chronicillnessawareness #chronicallyill #chronicillnesssucks #chronicpain #spoonie #stillsdisease #rheumatoidarthritis #potssyndrome #lupus #guillianbarresyndrome #autoimmunedisorder #autoimmunedisease #guillainbarre #gbssurvivor #hollyaftergbs #gbsawareness #guillainbarre #multiplesclerosis #cidp #gravesdisease #scars #loveyourbody #shareyourrare #lifeaftergbs #chronicinflammatorydemyelinatingpolyneuropathy #gbswarrior #cidpwarrior

Two weekends ago me and Casey participated in the

Two weekends ago me and Casey participated in the GBS-CIDP Foundation of Canada’s virtual walk & roll to raise funds and awareness for GBS and its variants ! ⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Remember, rare diseases are only rare, until they happen to you! I am a GBS survivor, one that couldn't even hold my daughter as a newborn, so I’m extra grateful to be able to do the simple task of going for a run with her now. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Today is the LAST day to donate - it would mean so much to me if you would please donate to this very important cause. Click the link in my bio and donate to our run!⠀⠀⠀⠀⠀⠀⠀⠀⠀
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" @hollyaftergbs #chronicillness #chronicillnesswarrior #raredisease #spoonie #guillianbarresyndrome #autoimmunedisorder #autoimmunedisease #gbs #guillainbarre #gbssurvivor #hollyaftergbs #gbsawareness #gbsrecovery #guillainbarresyndromesurvivor #shareyourrare #lifeaftergbs ⠀⠀⠀⠀⠀⠀⠀⠀⠀
#cidp #chronicinflammatorydemyelinatingpolyneuropathy #gbswarrior #cidpwarrior #mmn #gbscidpfoundationofcanada #raredisease #rareillness

Being a mom is such a blessing. And my little girl

Being a mom is such a blessing. And my little girl is not so little anymore. Miss Casey is growing like a weed and is almost as tall as me now, I just discovered that her legs are the SAME length as mine and she's in Grade 6! So I imagine she's going to be taller than me very, very soon…

I am so proud of the little woman she is becoming. She truly is my mini me, pure empathy and emotion that one, with her dads sense of humor. She makes me so proud ❤️

This morning we are off for test number 5 for Covid for her as she’s got a brutal cough. Crossing our fingers !

It's been a while since I've given an update or in

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